"I'm tired of autism"......
This is what I said to my best friend, Autumn this morning as I rounded the corner of my mom's neighborhood. I was trying to take the long way - as to stretch out the car ride a little longer - so I would have more time to chat.
I said it, because I changed the "expected" route to Grandma's house - and my child started screaming bloody murder.
(Demand for sameness - a trait of autism)
I have said it before - but this has been the most exhausting and intense experience in my life.
I stopped blogging for a period of time (November 14th - until today). I experienced a catastrophic rush of emotions on November 18th - and I let those emotions get the better of me in a bad way.
We had our first "IEP" (these are for children with special needs - in order to enter the school system - they evaluate the child and put them in a school setting)
Our placement was horrific - and completely inappropriate for Alexis. They also teamed up on us - 7 to 2....and rushed us through the meeting.
We did not sign the IEP - and they acted as if we were criminals for not doing so.
Little did we know - they did about 25 illegal things in that meeting.
My catastrophe started that day - and I will just say (without too much detail) - that I lost contact with "Bill". (see name of blog)
A horrific 6 week experience followed - and ended with a lot of tears and damage.
Grateful to say that Bill and I are friends again now - going on a month.
We are now pursuing a lawsuit for our daughter to be placed in a proper school setting. It is so shocking that you have to do this sort of thing to get your child into a proper school environment. I am learning way more than I would like to know. Hopefully I can use it to help another family in our situation.
Photographs...
(Yes - this blog is way out there on the tangents)
I began my day this morning by taking pictures of my daughter's poop.
We are working with a world renowned GI doctor - and our holistic doctor here in Atlanta to heal Alexis' gut.
We got all of our blood test results and stool results back, and I went over them with our holistic doctor.
I almost fell our of my chair when he told me that this was the most severe case he has ever worked with.
There are several things wrong with her blood.....and her gut. Everything that came up on the blood tests pointed to gut inflammation - and ulcers in her stomach (more than likely MMR in the gut) - which severely impairs cognitive function.
That being said - I don't care what anyone says about Wakefield - I have met him - and he does everything he does NOW with no profit motive. He only wants to help our kids. Let the smear campaign run.
It gives doctors and scientists with profit motives more time to hide and avoid the causation of all of these new cases of autism.
Many of our children are very sick internally.
My child is very sick - and I am just praying for the serenity to get through this time. We will make her better - and this time will pass.
I am amazed that Alexis is doing as well as she is.
She cries a lot (I believe out of mainly out of pain) - and it is very hard to be around - 24/7.
It is hard to believe what this life has turned into.
Right now - all I can do is drink my diet sprite and wait. Wait for the medications - wait for our trip to NY to see Dr. Krigsman - wait for our meeting with the school system and the lawyers - and Pray that our daughter gets better.
I love diet sprite. Seriously.
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